S (aged 9.5) has been complaining quite a bit over the last couple of weeks of back pain. It appears that he has probably had a bit of a growth spurt recently which has resulted in his scholiosis getting considerably worse. So after a couple of calls to the Kids Hospital, we are uping his dosage of valium at night, starting to give him some during the day if needed, and to give him Pain Stop Nighttime round-the-clock and Neurofen. We are off for an appointment with the Cerebral Palsy Team at the hospital on Monday, who will refer us to the Scholosis Specialist asap.
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| S caught this perch in the creek on our property. He was so proud! This was about 2 weeks ago and you can just start to see him leaning to the left from the scholiosis |
His OT visited today, and I discussed with her ways to try to alleviate his discomfort. He has outgrown his wheelchair and it is not giving him the postural support he needs, which in turn makes the scholiosis more painful, so she suggested keeping him out of his chair as much as possible until we are seen on Monday and hopefully the hospital physio team will have a loaner chair for us until his new one gets funding from the Gov (which is apparently going to be another six months!)
S is really such an amazing kid. He has taught me so many lessons about life, love and laughing. He rarely complains and is almost always smiling. He really is an inspiring young man and I feel blessed to be able to share his life.
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| S doing what S does best and loves doing the most - using tools! |
S is really such an amazing kid. He has taught me so many lessons about life, love and laughing. He rarely complains and is almost always smiling. He really is an inspiring young man and I feel blessed to be able to share his life.
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